Public and Patient Opinion into a Major Research Programme Looking at the Mechanisms of Imbalance and Dizziness in Traumatic Brain Injury
Patient and public involvement and engagement session on Thursday 14 August 2025 at 13:00. This session will be held online via Zoom.
About the session:
We need your feedback about a planned programme of research into imbalance and dizziness – i.e. vestibular dysfunction - following traumatic brain injury (TBI). The research involves five UK major trauma centres serving a population of over 15 million people, with three in London (St Mary’s, St George’s and King’s) as well as Birmingham (Queen Elizabeth) and Cambridge (Addenbrookes). It will be the largest and most detailed programme of research looking specifically at balance problems in TBI ever conducted. We plan to recruit 600 hospitalised patients with moderate-to-severe traumatic brain injury and follow each patient over one year to track their recov ery. The programme will reveal the mechanisms of vestibular recovery (inner ear and brain) and provide new avenues for developing treatment for patients with TBI.
In this session we will pose a number of questions including:
- If you think this is an important area to study deserving funding?
- If you think this problem is well served by the NHS currently?
- Whether you can suggest ways to improve our ability to recruit patients
- We will also ask for your thoughts on our PPIE action plan that involves:
- professional polling agency (e.g YouGov) surveying the public’s and healthcare professionals’ understanding of the vestibular issues affecting TBI survivors
- a collaboration with the Royal Ballet to co-create a performance with patients
- a session with members of Parliament to communicate the results of our polling and the outcome of the co-created performance and hence to influence legislation to improve patient care
We very much look forward to your input, whether you are a patient, family or friend of a patient, or a member of the public who does not have any vestibular problems.
To register for this session and receive the Zoom link, please email info@menieres.org.uk with your name and email address, confirming you wish to attend this meeting.
Back to top