Online Support Sessions

The Ménière’s Society hosts online sessions to give people a chance to chat with each other about their vestibular condition and how they manage it.

It was lovely to meet everyone, very positive and informative.

Meetings are hosted by the Ménière’s Society team and offer the chance for an informal discussion and an opportunity to ask questions*. From time to time, we’ll also have guest speakers discussing a variety of topics. There are sessions specifically for members of the Ménière’s Society and others for non-members. Meetings are held during lunchtime or in the evening to try and give everyone a chance to attend. Please note time stated is London, UK.

Further 2025 dates will be published in due course. For further information and/or support between meetings, please contact us. 

** March 31 2025 **  Input into research on treatments for dizziness following Traumatic Brain injury

Your help is needed! I am a physiotherapist working with other healthcare professionals and researchers to try and improve care for patients with traumatic brain injury. We have found that benign paroxysmal positional vertigo (BPPV), a common form of dizziness, affects around one third of people with traumatic brain injury who are in hospital. At the moment, however, we don't know what sort of treatments are effective. We are planning a clinical trial to find out which treatments work best but need some input from patients and the public to help us decide on some important aspects of the research.

In this patient and public involvement session we will ask questions such as: 

• What is the best way to ask patients who are in hospital with a traumatic brain injury to consent to taking part in research?
• How many follow up appointments are acceptable for patients to attend in a clinical trial?

We'd very much value your input. You don't need to have had dizziness or balance problems or a traumatic brain injury to attend. 

How to register to attend one of our online meetings

To register for any of these meetings, please email info@menieres.org.uk with your full name and your Ménière’s Society membership number (if applicable) and your preferred meeting day/time.

Places are limited to give everyone a chance to chat and will be allocated on a first-come first-served basis.

You will receive confirmation by email and a Zoom link for the meeting. 

If a meeting is oversubscribed we will run a waiting list.

We look forward to welcoming you to one of our meetings.

* Please note, questions should be of a general nature. We are unable to give medical advice or answer questions related specifically to your own medical condition.

I found it very useful and interesting to find out how other people are affected and how they cope with it. I am sure it will help me deal with the condition in future and I will join in with future meetings.

 

I did find it useful meeting other people in the same position as me. It's nice to talk about it with people who know what Meniere's actually is!